It seems like in this day and age, people have created their own language. Yes, I may type in English but don’t act like you don’t know what I mean when I throw an emoji in a post 😉 or if I drop a LOL in a sentence… LOL means, “laughing out loud” for those who have never met a teenager or who are born in the 1920’s. Something that I have noticed is that Parkies have their own language when trying to describe their symptoms. So I have started my own urban dictionary, which includes slang terms or phrases that I use frequently when defining Parkinson’s disease. Enjoy!
-The Blah’s: When I lack motivation to do something that I normally enjoy. I also use this term when describing a mental state of feeling impartial. Meh. I’m not depressed, but I have a gloomy cloud hanging over my head that I can’t shake and I don’t know why.
Use in a sentence: “I woke up this morning with a case of the blahs… I just don’t feeling like leaving the house.”
-On: When my Parkinson’s medications are working and I feel like tackling the world.
Use in a sentence: “I’m on right now, let’s go to the zoo and feed a rhino.”
-Raptor Claw: When my foot or hand is painfully cramping. The medical term is Dystonia, but that doesn’t sounds as cool as a talon on a bird of prey.
Use in a sentence: “Right in the middle of Disneyland, I got horrible raptor claw in my foot… I could barely walk.
-Diva: The arrogant attitude that my Parkinson’s has when things aren’t going her way and she thinks everything is about her. It’s the self-important, pompous side of PD and she can ruin your day.
Use in a sentence: “My Parkinson’s is being a damn Diva today…. I could barely get down the stairs.”
-Wolfpack: A group of people who you rely on for support. Your Wolfpack has you in the middle surrounded by resources such as your Neurologist, physical therapist, family, friends and even pets.
Use in a sentence: “I keep my Wolfpack strong so I can live my life to the fullest.”
-Off: When my Parkinson’s disease is at it’s worse and my medications are not improving my symptoms.
Use in a sentence: “I am so off right now, I just want to go home to my dog Crash and crawl into bed.”
-Parkie: A term I use for a person who has been diagnosed with Parkinson’s disease. I use the word “Parkie” as an endearing term, which is not slanderous, and is not making light of the serious opposition we endure. In fact, it reminds me that we are a community of amazing people who come together to encourage each other to be our best and we are not alone in our suffering.
Use in a sentence: “I met a Parkie today who has just been approved for Deep Brain Stimulation surgery.”
-Fro Yo: A magical delight that has the power to put me in a better mental state. I believe normal people call it “frozen yogurt” but the cool people, like myself, know it only as “Fro Yo”. Every place that my travels have taken me, I make it a mission to seek out the local hotspots for this delicacy.
Use in a sentence: “The most difficult place to find Fro Yo was in Paris… but I found it.”
-Too Much: This is when my environment gets too chaotic and noisy. An example is when the radio is on, my dog is crawling on my lap and my phone rings. With Parkinson’s, you lose the ability to multi-task. So when there are too many things happening at once, I feel overwhelmed. I have to turn the radio off, let my phone go to voicemail and focus on one thing.
Use in a sentence: “The concert I went to last night was not enjoyable… there were so many people and it was so loud, it was too much.”
-Slow as a Sloth: I use this phrase when I am moving slow and feeling rigidity throughout my body. Why do I say, “slow as a sloth?” Because that’s how fast I am moving… not to mention that sloths are just adorable and much cooler to say than “bradykinesia.”
Use in a sentence: “I don’t know what is up with me today, I am moving as slow as a sloth.”
I am sure as I carry on my journey with Parkinson’s disease, my language will continue to grow. I am curious… what would you put into the Parkinson’s Urban Dictionary?